Misophonia

All In London Forum
Page 1 of 1
Elliex
I have just discovered the name for my condition thats been bothering me for years, as long as I can remember, Misophonia!


http://en.wikipedia.org/wiki/Misophonia

This does not even touch on it..

Here is a day in the life of a suferer...exactly like me!

A typical misophonia sufferer's account
"All I can say is 'wow'. After 40 years of this most baffling and strange affliction including attempts to fix it with docs, counsellors and hypnosis - none of whom had answers or could relate to what was going on - I discovered the word “misophonia”. I still can’t believe others have these bizarre and life-affecting issues.

I’m in my 40’s and saw my first therapist for this in college. Since then, I’ve seen a total of 7 therapists: two psychiatrists, three psychologists and two hypnotherapists. Although they were mostly good docs, none of them could help and none of them really seemed familiar with this type of issue - they didn’t know of similar cases and didn’t seem to have any particular insight on how to approach it.

My “problem” is with severe irritation to particular noises and visual inputs, although using the word “severe” is a tremendous understatement. These “irritations” can enrage me to an extent it’s difficult to describe. It’s almost like a switch is flipped in my brain. The irritations started when I was around 6 years old with just one stimulus. Unfortunately, over time, that one stimulus has grown to include many other things that are vaguely similar to the original stimulus.

Around six years old, my Mom’s snapping of her gum began to bother me. She was a prolific gum chewer and almost every other chew of her jaw would produce a pop from her gum. (Just writing this angers me enough to want to throw my keyboard out the window). Soon, it was not just the snapping that bothered me but merely the sight of her chewing gum would do it as well, although the actual popping noise still produced the most rage. I dealt with it by trying to put up with it, avoiding it, complaining about it, getting her to throw out her gum, but whatever I did was no match for the rage that would come on when exposed to this. I could never put a dent in it. When exposed to someone else who was popping their gum, I would flee if I could.

I now think of my Mom’s gum popping as the “original and primary” irritation.

Within less than a year, this irritation had grown to include my family’s eating noises. (I now think of all the other irritations that grew from the original gum popping as “secondary.”)

I hated to sit down at the table with my family for meals or be around my brother when he ate his cereal in the morning. I would throw tantrums at the table and get sent to my room to eat; this was a huge relief because I was away from the irritation. When it became obvious to my parents sending me to my room wasn’t a good solution, they forced me to stay at the table for meals. This was excruciatingly unbearable and I would sit there and try and put up with it, kind of feeling like my head was going to explode the whole time and some how make it through most meals. Things that were crunchy were the worst; salad, crisps, raw vegetables, carrots etc.

Little by little, the problem expanded. Soon, my family’s breathing noises began to bother me. Sleeping with someone else in the room, overnight camping trips or a stay in a motel room with the family, were terrible. Then, I guess, “building” on the eating noises, I couldn’t stand hearing the clink and clatter of my family using their spoons/knife/forks while eating ie I’m in my bedroom with the door shut and my Dad’s eating his bowl of cereal in the kitchen and a million frigging times his spoon hits the bowl, especially at the end when he just has to get every single last molecule of milk and cereal out of the bowl. Here’s another weird one; my Dad would always sit in the living room or in front of the TV with his legs crossed and the ankle of his crossed leg he would rotate around and around and around. I couldn’t stand this.

My response to living where so many things drove me crazy was to spend as much time alone away from my family as possible.

Up through high school, the number of items that bothered me “grew” slowly. And here’s an interesting observation: the original, primary irritation of my Mom’s popping gum that enraged me so much… if a stranger popped their gum, it would produce a huge reaction from me while if this stranger did something that was a “secondary” irritation, it wouldn’t bother me as much; ie I could be in a cafeteria with friends eating and it wasn’t much of a problem, especially if there was a lot of ambient noise; I could be with a friend who was chewing gum but not popping it and it would bug me but not enrage me, I could be in a restaurant with friends and do OK. As I got older this began to change. Even by the time I was into high school I was noticing I could no longer go to a movie because of all the people eating their ****ing popcorn. All that chewing noise would just enrage me. Now it wasn’t just my family’s chewing noises but others chewing crunchy stuff that would do it.

Into college and for the last 20 years since, my irritations have grown to include many more things and my reactions to them are stronger and quicker. I’ve been dumbfounded by this over the years and think it’s the strangest thing. I avoid restaurants, movie theatres and will never ever put myself in a group situation such as attending a play, lecture or talk. There’s always someone there doing something that sets me off. Still at the top of the list is popping gum or even the sight of someone chewing gum; I can’t even stand to have the TV on a baseball game because so many of the players chew gum. Clicking, snapping noises are bad, finger nail clippers are the worst.

But many other things do it as well. Here’s one of them that’s bizarre: almost any oscillatory, repetitive motion someone does angers me ie I’m in a book store in front of a row of books and out of the corner of my eye I see someone who’s sitting in a chair and bouncing their leg up and down, I hate it. Or I’m in my car at a stop light and the women in front of me is repetitively curling a length of her hair around her finger, over and over and over again, I can’t stand it a have to look away. Noise and clatter in general now puts me on edge to the extreme.

It feels to me as if there’s literally a physical nerve path in my brain that’s burned into place and somehow all these stimuli find their way onto this burned in path that goes straight to my centres for rage.

Through the psychiatrists, I’ve tried many of the modern antidepressants and also gave Depakote and Neurontin a try. None of these had an effect on the irritations. One psychologist tried some learned relaxation responses and another (who was quite good and I spent multiple years with) did more conventional therapy and while I developed much insight from it, it also had zero effect on the irritations. Needless to say, living like I do is a huge set up for depression. But at least I feel there’s a reason for the depression; I think if anyone lived this way depression would be an issue.

That’s my story in a nutshell. I was feeling close to the end of my rope until “discovering” a couple weeks ago there are other people with similar issues.

Based on my prior experience in seeking help, it’s very important to find a professional that knows what’s going on and how to treat it. Otherwise you just spend a whole lot of time trying to bring them up to speed with what this phenomenon is about.

I do have to say that this problem is so pervasive in me, so instinctive and the anger so overwhelming and primal at times that it’s hard to imagine there could be a solution for it."
Posted: 2010-03-17 17:19:40
Page 1 of 1